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Iranian SMA Patient Registry

We are dedicated to advancing SMA research, improving patient care, and building a comprehensive registry that connects patients with national support and advances treatment options for Spinal Muscular Atrophy in Iran.

In Collaboration With

Tehran University of Medical Sciences Logo
SMA LogoIranian SMA Patient Registry
Children Care Logo

Our mission is to advance SMA research, improve patient care, and build a comprehensive registry that connects patients with national support and advances treatment options.

Understanding Spinal Muscular Atrophy

Spinal Muscular Atrophy (SMA) is a genetic disorder that affects the motor neurons in the spinal cord, leading to progressive muscle weakness and atrophy. Learn more about the causes, types, symptoms, diagnosis, and available treatment options for SMA.

Learn More About SMA

Our Impact

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Patients Under Supervision
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Medical Centers
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Years of Service

Submit Your Information

Help us build a comprehensive registry by sharing your information. Your data helps connect you to national support and advances SMA research.

Submit Information