Focused Research
Iranian SMA Patient Registry
We are dedicated to advancing SMA research, improving patient care, and building a comprehensive registry that connects patients with national support and advances treatment options for Spinal Muscular Atrophy in Iran.
Focused Research
Better Care
Family PartnershipIn Collaboration With
Our mission is to advance SMA research, improve patient care, and build a comprehensive registry that connects patients with national support and advances treatment options.
Understanding Spinal Muscular Atrophy
Spinal Muscular Atrophy (SMA) is a genetic disorder that affects the motor neurons in the spinal cord, leading to progressive muscle weakness and atrophy. Learn more about the causes, types, symptoms, diagnosis, and available treatment options for SMA.
Learn More About SMAOur Impact
With your help, the Iranian SMA patient registry is growing and becoming a valuable resource for patients, clinicians, and researchers.
Submit Your Information
Help us build a comprehensive registry by sharing your information. Your data helps connect you to national support and advances SMA research.
Submit Information
This initiative is financially supported by Ronagen. Their support enables us to create and maintain this registry and help SMA patients in Iran access better care and more hope.