Privacy Policy
Last Updated: 12/12/2025
Introduction
This Privacy Policy describes how we collect, use, and protect your personal information when you use our website and services. We are committed to protecting your privacy and ensuring the security of your personal data.
Information We Collect
We may collect personal information that you provide to us directly, such as your name, email address, phone number, and medical information related to Spinal Muscular Atrophy (SMA). We also collect information automatically when you visit our website, including your IP address, browser type, and usage patterns.
How We Use Your Information
We use the information we collect to provide and improve our services, communicate with you, process your registration and submissions, and conduct research related to SMA. We may also use your information to comply with legal obligations and protect our rights.
Data Protection
We implement appropriate technical and organizational measures to protect your personal information against unauthorized access, alteration, disclosure, or destruction. However, no method of transmission over the Internet is completely secure.
Your Rights
You have the right to access, correct, or delete your personal information. You may also withdraw your consent at any time. To exercise these rights, please contact us using the contact information provided on our website.
Contact Us
If you have any questions about this Privacy Policy, please contact us through the contact form on our website or by email.